Hoarding Disorder: Diagnosis, Treatment, and Misconceptions


Episode Overview:
In this episode, host Cali Werner welcomes special guest Jelani Daniel, a seasoned clinician specializing in anxiety and related disorders. Together, they explore the complexities of hoarding disorder, its psychological impacts, and the importance of compassion and understanding in supporting those affected. They discuss common misconceptions about hoarding, the distinctions between hoarding and collecting, and share valuable resources for both individuals struggling with hoarding and their loved ones.
Key Insights:
- What is Hoarding Disorder? Defined by persistent difficulty in discarding possessions, regardless of their value, which can severely impact living spaces.
- Misconceptions: The portrayal of hoarders in media, especially reality TV, often emphasizes extreme cases and does not represent the average experience.
- Hoarding vs. Collecting: Important distinctions exist; collectors are organized and display items, whereas hoarding presents a cluttered living environment without utility.
- Support for Family Members: Encouragement for family and friends to seek their own support while navigating the challenges of living with or supporting someone who hoards.
Notable Quotes:
- "Hoarding can look a lot of different ways." – Cali Werner
- "Cleanouts do not treat the individual; they treat the house." – Jelani Daniel
- "Not all clutter is hoarding, and not all clutter is due to hoarding disorder." – Jelani Daniel
Timestamps:
- [00:00:00] - Introduction to the episode and hosts
- [00:01:10] - Introduction of guest Jelani Daniel
- [00:05:00] - Discussion on what defines hoarding disorder
- [00:10:09] - Impact of hoarding on individuals and families
- [00:16:45] - Misconceptions about hoarding vs. collecting
- [00:24:38] - Understanding the psychological aspects of treatment
- [00:39:40] - Resources for family members and support groups
- [00:43:01] - Conclusion and call to action
Relevant Resources:
- Houston OCD Support: houstonocdsupport.org
- Family as Motivators: gregchasson.com
- National Alliance on Mental Illness (NAMI): nami.org
Call to Action:
If you found insights in this episode beneficial, please subscribe to our podcast on your favorite platform, leave us a review, and share your thoughts or questions on social media! Connect with us on Instagram @theanxietysocietypod or visit our website at anxietysocietypodcast.com to engage with our growing community.
Welcome to the Anxiety Society Podcast.
Speaker AWe're your hosts, Dr.
Speaker AElizabeth Mackinbell and.
Speaker BCallie Werner, both therapists and individuals that have navigated our own anxiety journeys.
Speaker BHave you ever wondered how we became a society that is so defined by anxiety?
Speaker ATune in as we discuss, learn, and dive into what anxiety is, how we perpetuate it, and how we can stop it.
Speaker BThis podcast will be real, raw, and unfiltered, just like the anxiety that plagues so many of us.
Speaker BWe are here to push boundaries, challenge the status quo, and deep dive into topics that are sure to make you uncomfortable.
Speaker AIf you're ready to step outside of your comfort zone and explore the unfiltered truth that will help you change your entire relationship with anxiety and get back to living your life by, you're in the right place.
Speaker BThis is the Anxiety Society Podcast.
Speaker BWe live it, we contribute to it, and together we can change it.
Speaker CAnd there's one thing that I need from you.
Speaker CCan you come through?
Speaker BWelcome back to the Anxiety Society Podcast.
Speaker BToday we have a special guest, Jelani Daniel, a friend and clinician in the field, and we're going to be discussing hoarding, which is something that I am no expert in.
Speaker BSo I'm so excited to just catch up with you, Jelani, because we haven't talked in forever, but then also just to learn from your wisdom, you have to bring to us about hoarding disorder.
Speaker CYes.
Speaker CI'm very happy to be here, very happy to be able to talk about this topic because it's not something that is often talked about, and certainly much more help and information is needed.
Speaker BYeah.
Speaker CThank you for having me.
Speaker BOf course.
Speaker BMore anytime.
Speaker BWe would love to have you, but before we do that, I know I gave you a little precursor that we start with an anxious moment.
Speaker BAnd so to give you a moment to think about yours, maybe that actually probably isn't helpful because it just builds up more anticipation.
Speaker BUh, but I'll go first.
Speaker BAnd I think mine is I'm really trying to meet this deadline for that I put on myself for my dissertation because I think I would just work on it forever if I didn't do that.
Speaker BAnd I want to be done with my PhD program, but I'm really struggling to find the time to do it.
Speaker BAnd it's challenging because I get home at the end of the day, and people are like, just write for 30 minutes.
Speaker BAnd I'm more of a like, no, I need four hours to sit and do that.
Speaker BBut, like, where do I find the four hours?
Speaker BAnd so I just know I have all this work to do.
Speaker BBut the anti anticipation just keeps building because I haven't been able to touch it or do it.
Speaker BAnd so that's my anxious moment.
Speaker BWhat about yours?
Speaker CWell, I can strongly relate to that as writing is a significant struggle of mine.
Speaker CBut my biggest anxious moment, at least for this week, I have two.
Speaker COne being this podcast and that public speaking actually is the biggest trigger of anxiety for me has has long been that, but it's much better now after working on it over the years.
Speaker CThe other anxious moment though, is potty training my toddler utilizing the diaperless method.
Speaker CSo ye.
Speaker CBut it's been successful.
Speaker CIt's been surprisingly successful.
Speaker CSo in the end the anxiety diminished quite a bit because she is now much better.
Speaker BI can't imagine.
Speaker BI mean, I know it's like horrible to be that person that says, well, I only have dogs and I can relate even though I really can't.
Speaker BBut yeah, I have these two puppies at my house.
Speaker BWe're trying to find homes for now and I just find myself chasing them around.
Speaker BLike, when are you gonna go next?
Speaker BLet me make sure I get you outside.
Speaker BSo with a toddler, I can't even imagine.
Speaker CBut yeah, it's not.
Speaker CAnd the accidents weren't going around the.
Speaker BHouse, but yeah, yeah, well.
Speaker BAnd then also with the public speaking piece, that surprises me, but I guess it also doesn't because you are an ERP therapist, exposure therapist.
Speaker BBecause I see you like signing up for talks at conferences and public speaking often.
Speaker BAnd so it's a surprising anxious moment.
Speaker CThose are all my exposures.
Speaker CPersonal exposures.
Speaker BSee listeners, we do our exposure work too, not just recommend it for others.
Speaker BWell, Jelani, I'm gonna go ahead and introduce you to our listeners and then we will dive right into today's content.
Speaker COkay.
Speaker BJelani Daniel is a licensed professional counselor who has recently become a full time staff clinician at Psychology Houston.
Speaker BHe has 20 years of experience involved in the treatment of patients with anxiety, OCD and related disorders while working at various OCD clinics including the Meninger Clinic, Baylor College of Medicine, and the OCD Institute.
Speaker BHe also moderates a bi weekly hoarding and clutter support group that is virtual and free to the public.
Speaker BOoh, where do people sign up for that?
Speaker CSo you can go to Houston ocdsupport.org It's a website that was recently created.
Speaker CDr.
Speaker CHart, Dr.
Speaker CJohn Hart and myself as well as some other people who are part of that project.
Speaker CAnd so yeah, they can go there and be able to reach me and I can provide them information and to get them to be a part of the group.
Speaker BExcellent.
Speaker BThat's such a great resource and something that I know has been valuable in your life forever.
Speaker BBecause when I was still just like a wee little lass, I remember my first public speaking opportunities were joining you and Dr.
Speaker BHart at the OCD support group, where we all sat around a roundtable, and I was so nervous.
Speaker COh, me too.
Speaker CI was, too.
Speaker CYou were not alone.
Speaker BI was.
Speaker BWe've come so far.
Speaker BWe've come so far.
Speaker CYes, that's right.
Speaker BOkay.
Speaker BWell, the reason I can't wait to kind of dive into this topic is because I think with hoarding, it seems so far removed from so many people's lives, but really, in a lot of ways, it's right under our noses when we get to the nitty gritty of what hoarding disorder includes.
Speaker BRight.
Speaker BBecause people often think, what is.
Speaker BWhat is the show?
Speaker BHoarders.
Speaker BIs that what it's called?
Speaker CYeah, there are multiple shows.
Speaker CThat's one of them, I think.
Speaker CHoarders Buried Alive or Hoarding Buried alive, something like that.
Speaker BYeah.
Speaker CAt least two or three of them.
Speaker BRight.
Speaker BWhich you think of these extreme cases all the time, which definitely are out there, but that's not always the case.
Speaker BAnd hoarding can look a lot of different ways.
Speaker BAnd so I feel like whether our listeners are struggling with this, know someone that's struggling with this, something about today's episode will be relatable.
Speaker CYes.
Speaker BSo let's dive right in.
Speaker BWhat would you say defines or destitutes hoarding disorder?
Speaker CHoarding disorders.
Speaker CI guess if we look at it in terms of the DSM criteria, hoarding is defined as persistent difficulty in discarding possessions regardless of value.
Speaker CAnd that's often a misconception in that people feel as though in the past it was seen as people who struggle with hoarding only struggle garbage or trash.
Speaker CAnd that's not true.
Speaker CAt least we see that that's no longer really the case and that individuals may hoard items that could be unused and brand new.
Speaker CSo it's not trash, and it could be very high value items as well.
Speaker CRight.
Speaker CSo we have that first criterion.
Speaker CIt's persistent difficulty discarding possessions.
Speaker CThe second one being, you know, this difficulty is due to perceived need to.
Speaker CTo save the items and the stress related to that.
Speaker CThe third criterion is then the accumulation of these items that leads to the clutter.
Speaker CAnd that's the, you know, the big issue.
Speaker CRight.
Speaker CAnd the clutter is it's important to know that the clutter is of active living spaces.
Speaker CSo if someone has Say a garage or a shed or a storage unit that is cluttered.
Speaker CThat is not considered hoarding disorder.
Speaker CRight.
Speaker CIt's if it prevents one from being able to utilize their active living spaces for their intentional purposes.
Speaker BOkay.
Speaker BI was going to ask a question about that too, because I wondered, like, in today's digital age, if there's.
Speaker BIf someone can be defined as a hoarder, if they, like, are saving a lot of digital things on their computer system or their photo library, would that be a characteristic of hoarding or.
Speaker BNo.
Speaker CSo it's a good question.
Speaker CAnd that's something that is, I think, being looked at and talked about a bit more this day and age.
Speaker CYou know, in terms of digital hoarding, there is no, you know, like, DSM disorder in relation.
Speaker CIn relation to digital hoarding.
Speaker CAnd I think, because at least right now, it's not something that, again, interferes with someone's ability to live.
Speaker CRight.
Speaker CSo it's not causing that dysfunction in terms of like, say, like social psychological dysfunction or impairment in, like, social, occupational, or other ways of life.
Speaker CNow, it may cause their devices to be a bit more difficult to use.
Speaker CMaybe a lot of times you may have individuals who not only may have cluttered, like, you know, phone and, I don't know, music or whatever, images and stuff on their devices, but their email, their, you know, inboxes may be completely full, not able to receive any emails, things like that.
Speaker CSo.
Speaker CSo that could produce some impairment, but not usually to the state of where it's causing significant distress or just, you know, that we would define as a disorder.
Speaker CBut it's something that's still being, I think, looked into more in this day and age?
Speaker BGot it.
Speaker BThat makes a lot of sense.
Speaker BAnd then what about just the impact that hoarding has on the individual and the family members with, you know, psychological impact, social lives?
Speaker BWhat are some of the.
Speaker BThe key things you see so much.
Speaker CSo for the individual now, it depends because sometimes part of what also goes along with the diagnosis is whether or not or how much insight a person has we can have.
Speaker CYou know, people can have varying levels of insight, you know, from being very insightful to being very absent and having no insight at all and not seeing it as a problem.
Speaker BRight.
Speaker CThose individuals who have no insight tend to have much more poor prognosis, tend to be the ones that are much more defiant, the ones that are not going to look for help.
Speaker CAnd they see it as.
Speaker CThat is your problem, not mine.
Speaker CHoarding, though, can impact, could put a significant strain on, say, families or couples.
Speaker CA lot of Relationships, especially if others within the home are not individuals who struggle with hoarding.
Speaker CSometimes you have maybe families that hoard together, and so that can just create, you know, exacerbate the whole living situation and become quite problematic.
Speaker CNow, if you have children living within the home and they are, you know, it's the parents or some other guardian is the one hoarding, then that's creating a very, you know, dangerous situations for those kids.
Speaker CAnd sometimes, you know, child protective services might have to get involved.
Speaker CI mean.
Speaker CI mean, we're also looking at.
Speaker CThere's so many risks that hoarding and the clutter itself can produce.
Speaker CSo, you know, fire hazards, for one, you know, all sorts of trip hazards, fall hazards, you know, items falling on top of people, pests, you know, attracting pests and whatnot.
Speaker CEspecially if there's animals within the home, you know, that could be an additional problem if, you know, fecal matter and all these other things that can just lead to health issues or just accumulation of dust and could also cause not only issues for the individuals within the residence, but also for maybe if, you know, neighboring homes or residences.
Speaker CRight.
Speaker CSo if this is a very large clutter issue that, say, is attracting us, you know, mice, rats, roaches into the area.
Speaker CRight.
Speaker CYou know, that's not just affecting that home or.
Speaker BRight.
Speaker CThat residents could be affecting neighbors as well.
Speaker BAnd so what.
Speaker BWhat I would kind of want to know then is do you see more people that are struggling with this attract or not?
Speaker BI guess the word would be like, collecting kind of the same thing, or is it more of like a vast range of different items that are building up in the house?
Speaker BDoes that question make sense?
Speaker CThe way I'm interpreting your question, Are you, like, making a distinction between hoarding and collection?
Speaker BNo.
Speaker BSo.
Speaker BSo sorry, I guess I should use the word hoarding.
Speaker BAre they hoarding, you know, like I've seen on, again, tv.
Speaker BNot the best place to.
Speaker BAnd I will be the first one to say that I wouldn't treat hoarding disorder.
Speaker BI would refer to you.
Speaker BBut do they.
Speaker BLike, I've seen people who hoard animals, like, specifically are hoarding animals, but then I see other people that have just this vast array of different items that are living amongst their house.
Speaker BLike, which one is more common?
Speaker CAnd let me say that animal hoarding is a completely different thing altogether.
Speaker CSo when we talk about hoarding disorder, we're specifically talking about object hoarding.
Speaker BOkay.
Speaker CAnimal hoarding.
Speaker CProbably best that we don't go into that right now, but let's just say that that's.
Speaker CIt's just a completely different thing.
Speaker CIt doesn't follow the same type of, you know, mechanisms and psychopathology as object hoarding does.
Speaker BOkay.
Speaker CWhen it comes to object hoarding, I think it is important, though, to define a difference between hoarding and collecting, because a lot of times people will, like, even have friends I know who.
Speaker CWho have other friends who have large collections of things.
Speaker CAnd, you know, they often say, hey, you might need to go help them.
Speaker CI think they're.
Speaker CThey're hoarding.
Speaker CIt's like, well, no, technically they're not.
Speaker CAnd the thing is, collecting is different from hoarding in the sense that collectors typically will.
Speaker CEven if they accumulate a large number of items, they are usually treating their items in a way in which they are displaying them.
Speaker CYou know, they have them out and organized.
Speaker CAnd even if, say, they have a collection that is from, like, floor to ceiling filled with something, again, if it's organized and it's out for display, then dealing with a collection here, they're treating it with respect.
Speaker CThey're actually using their items.
Speaker CAnd it's not cluttered in the sense of, like, disorganized and maybe things piled on top of.
Speaker CTop of each other.
Speaker CClutter, again, tends to be cluttering active living spaces, preventing people from being able to utilize those spaces or.
Speaker COr whatnot for their intended purposes, and it causes dysfunction and despair.
Speaker BThat is really good to know.
Speaker BYeah.
Speaker BSo that's how you would explain it or educate it to someone that is getting the terms misconstrued.
Speaker BRight.
Speaker BOkay.
Speaker CYes.
Speaker BAnd then for individuals that are struggling and they are.
Speaker BYou're.
Speaker BYou're kind of pointing out this would be destitute as a hoarding disorder.
Speaker BAre they usually hesitant to make changes, or is it varied?
Speaker CIt varies, again, depending on insight.
Speaker CBut what you will often encounter are individuals who are experiencing ambivalence.
Speaker CRight.
Speaker CIn the sense that they may recognize that they have a problem and that it's a difficult situation to deal with, and they want it to be better, but then at the same time, they are struggling and that they may not want to let go of items and let go of, you know, some possessions and that because they don't want to experience whatever comes with doing that, whether it's the emotions that may come up or the thoughts that may come up.
Speaker BAnd so then what would you say you do to motivate individuals that are struggling with hoarding disorder?
Speaker COne of the things that is important that I find to be important not just when it comes to treating hoarding disorder, but any disorder truly is helping individuals to Focus on the things that they find to be important, like how do they want to, how do they want to be in their lives?
Speaker CWhat are the things that they want to do, they want to experience or they want to pursue that they're not doing so right now.
Speaker CSo for a lot of individuals, they may have isolated within the residence for so long and not have people over that they really are seeking connection, would like to have connection, but are feeling too much shame to be able to have people over.
Speaker CSo being able to keep those things in mind in terms of the things that they are seeking and things they would like to experience, like, all right, if you want to be able to have individuals over, you want to be able to socialize.
Speaker CRight.
Speaker CLet's keep that in mind.
Speaker CLet's keep your eyes on the prize is one thing I like to say.
Speaker BYeah.
Speaker BSo like a lot of values based work, it sounds like, right?
Speaker CYes, definitely.
Speaker BOkay.
Speaker BYeah.
Speaker BAnd then what about just like, when you think about common misconceptions with hoarding, I know we've talked about a few, right.
Speaker BLike collecting items versus clutter.
Speaker BAre there any others that pop up in, in your head that need to be demystified?
Speaker CYeah.
Speaker CSo, you know, we were mentioning earlier about the TV programs.
Speaker CAnd so a lot of people, people who don't experience this and don't know much about hoarding tend to think that, oh, everybody who struggles with hoarding is like that.
Speaker CIt's like the extreme situations.
Speaker CAnd no, that's not the case.
Speaker CAnd you know, it has a, you know, wide variety of how it's displayed, but you know, a lot of different, varying levels of severity.
Speaker CAnd most people are not like what you see on tv.
Speaker CWell, there are many people like what you see on tv.
Speaker CThat is not typically the case.
Speaker CAnd when I, individuals I work with, I actually don't come across those extreme cases that often.
Speaker CBut that's, that could be due to a lot of reasons and that a lot of times in those extreme cases they may not be able or willing to look for help.
Speaker BRight, right.
Speaker COr, you know, and feeling a lot of shame.
Speaker CBut in terms of other misconceptions also in relation to tb, those clean outs are not as helpful as one might believe.
Speaker BYeah, it's not like really a treatment modality, right?
Speaker CNo, it's not at all.
Speaker CClean outs do not treat the individual.
Speaker CCleanouts treat the house.
Speaker CSo if a person is not receiving therapy in addition to say a clean out, then it's, it's highly likely that the individual is just going to revert back to hoarding more, keeping more items, and more often than not they actually hoard.
Speaker CThe situation becomes worse than what it was before.
Speaker BWow.
Speaker BAnd it's wild to me that like I, I've seen an episode or two of that and like they don't ever mention the therapy side of, of things with that, which is infuriating.
Speaker CYeah.
Speaker CAnd I think so.
Speaker CA lot of people don't realize that therapy is an important process, important part of that process.
Speaker CAnd so without it, you know, people, the individual, individuals are not learning how to be able to be able to maintain, you know, a home, say once it's been cleaned out and tidied or so therapy is important for individuals to learn how to be able to approach these situations much more effectively.
Speaker CLearning how to feel their feelings, learning how to, learning how to face these anxiety provoking situations.
Speaker CAnd it's not just anxiety, but it's fear of experiencing guilt, sense of regret, shame, and so on and so forth.
Speaker BYeah.
Speaker BAnd so when you go to a person's house, can you usually or can you always tell if someone is struggling with hoarding by the way they keep a certain area in their home?
Speaker CThe interesting thing is I can often tell before you even get into a.
Speaker BHome really, what are some of the key like questions that you ask to get to that place?
Speaker CSome of the telltale signs is that the clutter often isn't just contained within the home.
Speaker CYou will often see signs outside of a home, whether it be plants and often dead plants all around or other things just out in the yard or oftentimes people's vehicles may be filled with clutter too, or patios or front porches.
Speaker CAll these sorts of things can be signs if we're talking about a home or balconies in relation to apartments, whatnot.
Speaker CBut in terms, in terms of how to I guess like assess whether or not someone is struggling hoarding it.
Speaker CI'm looking for, looking at emotional attachments.
Speaker CI'm looking to see because actually I should back up in the sense that not all cases of clutter are hoarding disorder.
Speaker CI think that's also another like, important misconception and that everybody thinks that if there's ever a cluttered situation, oh, that person is, quote unquote, a hoarder.
Speaker CAnd also I don't even like that word hoarder.
Speaker CI tend to use the word, the phrase, like someone struggling with hoarding disorder or things of that sort because hoarder.
Speaker BCan be very identifying.
Speaker CYes.
Speaker CCarries that stigma, labels a person as their disorder.
Speaker BYeah, it's a great point.
Speaker CRight.
Speaker CSo but going back to what I was saying, if I can get back on track to what I was saying.
Speaker BWell, you mentioned that not everyone that has clutter is someone that is hoarding.
Speaker CRight.
Speaker CSo even individuals with OCD can often have cluttered residences.
Speaker CLet's say an individual with contamination ocd, where they may struggle to touch, you know, touch anything that they just feel is contaminated, say, like trash.
Speaker CI've seen individuals where they don't like to throw things away, they don't like to touch trash cans, so instead they just leave the trash all over the place.
Speaker CAnd over time, that can accumulate into clutter.
Speaker BOkay, so that's similar to, like what we do in OCD work, right?
Speaker BWe.
Speaker BOur acronym is wtf.
Speaker BWhat's the funct?
Speaker BLike, identifying the function behind the behavior is important to diagnose hoarding.
Speaker BOkay, that's great to know.
Speaker CYes, absolutely.
Speaker BYeah, I'm learning a ton.
Speaker CYeah.
Speaker CBecause not everybody has an emotional attachment to items.
Speaker CSo in those cases of ocd, it may be whether it's.
Speaker CThey just don't want to touch the items or whether, you know, it could also, for individuals with adhd, often may have difficulties with clutter in which they may use items and just place them wherever, after they're done with them, move on to something else, move on to another things, and just kind of might be very disorganized and just struggling to stay on task and continue to tidy up areas.
Speaker CAnd so just over time, clutter can build.
Speaker CBut again, it's not due to an emotional attachment.
Speaker CIt's just due to maybe some, whether it be executive functioning issues and.
Speaker CAnd whatnot, the attention deficit issues that can lead to clutter.
Speaker CI mean, lots of other reasons, depression, dementia, schizophrenia, all of these can at times lead to cluttered situations.
Speaker CAnd so it's not always hoarding disorder.
Speaker BAh, okay.
Speaker BAnd then what would you say causes hoarding?
Speaker BAnd I know there's probably not a clear cut answer.
Speaker CYeah, that's a really good question.
Speaker CYeah, it's not really clear cut.
Speaker CThere.
Speaker CThere are known to be some genetic factors, like hoarding often does run in families.
Speaker CYou may see situations where it's, you know, a parent and a child both living in a home and both are hoarding.
Speaker CAnd so, you know, kids can be or have a genetic predisposition to developing hoarding disorder.
Speaker CYou can see it as early as childhood.
Speaker CBut the thing is, even for everyday children, it could be quite normal for children to want to keep items and struggle to part with items that let go of it.
Speaker CBut it's more of a Sign of a problem.
Speaker CIf you see this continuing to develop over time and an accumulation of items just struggle in life, go of anything and there's no budge or no change in that.
Speaker CAnd again, if there's emotional connection or emotional attachment to items, then you know, there could be, those could be early signs of a problem.
Speaker CBut usually hoarding doesn't become a big problem until there again is accumulation of items, till it becomes clutter.
Speaker BWould you say there's preventative work that if some kids are having some of these characteristics, preventative work they can do before it gets to that point?
Speaker CThat's a good question.
Speaker CAnd see, the thing is, we usually don't see kids because oftentimes parents are going to be involved in keeping kids in check of like cleaning up their rooms and things.
Speaker CWhether it's by force or whatever, kids just ultimately succumb to making those changes.
Speaker CBut again, you usually don't see the problem arise until it's much later in life, once a person has actually had time to accumulate a large amount of possessions where it's causing the clutter and dysfunction.
Speaker CBecause you can have somebody struggling with for decades, but it's not really seen as a problem until again, it's, they can't use plenty of different spaces, can't use a bathroom, can't use their living room, kitchen, whatever, because of the clutter over, has accumulated over time.
Speaker BYeah.
Speaker BAnd then you often see with like many disorders, when life gets stressful, symptoms exasperate.
Speaker BSo if someone who is struggling with hoarding is dealing with more stress in their lives, do you often see those symptoms also exasperate?
Speaker CThey can so, so also tying into an earlier question about like, misconceptions.
Speaker CSo trauma is often, people often assume that if somebody is struggling with hoarding, then they must have experienced trauma.
Speaker CNow, while many individuals who do struggle with hoarding have experienced trauma.
Speaker CBut it is not to say that all people who struggle with hoarding experience trauma.
Speaker CI don't even know, I don't know what the statistics are, but I'm not even sure that the majority of individuals with hoarding struggle or have experienced trauma.
Speaker CBut certainly when certain types of stressors may be experienced, it can lead to individuals maybe accumulating more items because the accumulation of items tends to be like a coping mechanism to deal with negative thoughts, negative feelings, like, oh, if they're feeling sad and depressed and down, let me acquire something and I'll feel better.
Speaker BRight, Right.
Speaker CAnd that cycle continues like, okay, well, I feel better, but I still, I don't feel all that great.
Speaker CAnd I don't, you know, I'm still kind of sad.
Speaker CMaybe I should get some more stuff so I can feel even better and then buy more stuff.
Speaker CBut still, you know, just continues on and on and on and on and on.
Speaker BYeah, that's so interesting.
Speaker BAnd so then when someone is struggling, like if you have an anonymized case or something, that comes to mind, like, what is the treatment process look like?
Speaker BAre you going in the home with them?
Speaker BAre you virtually coaching them?
Speaker BLike, how does treatment look?
Speaker CSo I typically start off with, with home visits so that I can really get a good look at, you know, the condition of the home, the content of the clutter, and just starting off with prioritizing what spaces are important for the person to try to get back, to regain reclaim, so to speak, sooner than later.
Speaker BRight.
Speaker CWe'll focus in those areas in terms of assessing, first of all, what is difficult for them in discarding the items.
Speaker CWhat comes up, whether it be, well, if I let go of these items, then I'm going to feel that I'm wasteful, or if I let go of this, then I am going to feel a sense of regret because I could have used it again, or if I let go of this because of sentimental value, then I'm going to feel like I'm letting go of a loved one who passed away.
Speaker CSo there's all sorts of reasons as to why people may hold on to items and so want to assess that first.
Speaker CAnd then, you know, also just looking at, well, what are they?
Speaker CWhatever they're afraid to experience.
Speaker CSo if they're afraid to, you know, feel again, regret and anxiety, sadness and whatnot, you know, we can start off by, in a sense, we're doing an exposure.
Speaker CWe can look to discard an item that might be low on their, low on their hierarchy in terms of not causing a very high amount of anxiety or distress and seeing, well, and let's see what happens.
Speaker CWhat do you expect to experience by letting go of this?
Speaker CAnd let's compare it to what actually occurs in doing so.
Speaker CWe're setting up this opportunity for learning so that they can see for themselves, like, oh, I really thought this was going to be a much worse situation, much worse experience, but it wasn't as bad as I thought.
Speaker CAnd we wanted to continue building on those experiences to help building their confidence and helping to again, build a sense of learning so that they can see that they have the ability, that they have the potential to be able to be successful in this.
Speaker BLike a lot of anticipatory anxiety builds.
Speaker BThat's a part of this.
Speaker CYes.
Speaker CAnd trying to develop more willingness to experience, you know, this.
Speaker CThe discomfort, whether, again, uncomfortable thoughts, uncomfortable emotions, whatever, that they may be reluctant to experience.
Speaker BAnd is it a lot like exposure work, in a sense, where you start small and then work your way up to maybe some of the larger items?
Speaker CSo it depends.
Speaker CI actually, if.
Speaker CIf we can.
Speaker CI like to be able to work with larger items that they may be more willing to let go of first so that we're making more space sooner than later.
Speaker BRight.
Speaker CCertain items I don't like to start off with first tend to be paper or miscellaneous items.
Speaker CAnd that's because a stack of papers can.
Speaker CThere can be, you know, hundreds or thousands of pieces of paper and, you know, one stack of paper and like, that can be very time consuming to go through.
Speaker BInteresting.
Speaker CEspecially if a person feels like they need to go through all the different sheets.
Speaker CYou know, that's just not something to focus on early on.
Speaker BRight.
Speaker CIn the treatment.
Speaker BAnd it makes sense because, like, if they have a larger item moved first, they can see that progress, and that would build motivation.
Speaker CRight.
Speaker BOkay.
Speaker CYes.
Speaker CYeah.
Speaker CAlso, just to add to that, an important part of that process of taking pictures, before and after pictures, because it can be very difficult for individuals to objectively see the progress that they've made because you can do all this decluttering, and then they're like, it doesn't look all that different.
Speaker CBut if you take some pictures, you can definitely see it very clearly about how it's different.
Speaker CAnd so that they can see that progress and feel more confident and what they're doing.
Speaker BYeah.
Speaker BJust as you're saying this, it makes it so much more painful to.
Speaker BAnd I'm not even in it with a family member.
Speaker BRight.
Speaker BBut to just consider what happens with those Hollywood shows, like how they just.
Speaker BI know we talked about this already, but go in and wipe it clean.
Speaker BWhen there's, like, a very strategic approach to take to help someone get better and recover, that's not happening.
Speaker BWhich blows my mind.
Speaker CYeah.
Speaker CWell, I will say that I think, you know, oftentimes with those shows, they do have a therapist on board.
Speaker CAnd so there's a lot that we probably don't see behind the scenes in terms of, like, the therapy taking place.
Speaker CSo just to be fair to the shows, but whether or not it is sufficient, I think is questionable.
Speaker CI don't think so.
Speaker CUnless, again, they're receiving, you know, months of treatment afterward, because hoarding is not a quick and easy process to treat.
Speaker CIt does take Believe it's the average time that for treatment is about a year, if I'm, if I'm.
Speaker CIf I recall correctly.
Speaker CAnd sometimes it could be a lot more.
Speaker CIt just depends on the situation, depends on the size of residents, you know, the abilities of the individual.
Speaker CIs this an elderly person who can't really move much, or are we dealing with someone who's maybe younger and maybe has support and help?
Speaker CSo it just varies.
Speaker BAnd how often are you usually meeting with someone?
Speaker BLike, is it weekly?
Speaker CYeah, try to meet weekly.
Speaker CAnd after the initial home visits, can often do virtual coaching and doing much of the same.
Speaker CBut it just.
Speaker CIt also just depends on what clients are able to handle, what they can manage, what they can afford.
Speaker CYou know, one of the unfortunate things about I think these situations, often clients may be more on the lower SES side and may not be able to afford treatment as much.
Speaker CAnd, you know, I don't know of any insurance that, you know, reimburses for recording treatment, you know, or if they do that, probably not very much, which.
Speaker BIs wild because like we have talked about, there can be fire hazards, there can be safety, medical problems that come from the, the hoarding behaviors.
Speaker BThat.
Speaker CRight?
Speaker BYeah.
Speaker BIt's so surprising.
Speaker CYeah.
Speaker BAnd then with family members, is there anything.
Speaker BBecause I'm sure family members are such a big part of this.
Speaker BRight.
Speaker BEspecially if the individual that engages in the hoarding has a lot of shame or like you said, just doesn't necessarily want treatment because of that shame.
Speaker BHow would you, or what advice would you give a family member that knows they have a loved one struggling?
Speaker CSo this is a tough.
Speaker CCan be a tough one.
Speaker CAnd so one thing that I often encounter is may have actually loved ones who attend, like my support group or, you know, any other, find some other support for themselves prior to being able to get support for the person who's struggling with hoarding, especially if that individual who struggles doesn't have as much insight, you know, isn't very willing to work on the issue.
Speaker CYou know, there's a former.
Speaker CI have a former colleague named Greg Chassen who is, I believe, in University of Chicago right now, and he has developed modality referred to as family, as motivators.
Speaker CIt's a wonderful idea.
Speaker CAnd what it does is instead of bringing in the individual who struggles with hoarding, it brings in the family to receive the therapy in terms of giving them guidance as to how to be able to do this step by step with their.
Speaker CWith their loved one.
Speaker BWow.
Speaker CAnd so it's something that's still.
Speaker CWe're Trying to, it's being disseminated a bit more.
Speaker CDr.
Speaker CJohn Hart and Greg and myself, Dr.
Speaker CChasin, we did a training in Houston, I believe a few years ago in regard to just boarding treatment as well as family as motivators.
Speaker CBut still that's not enough.
Speaker CThere needs to be a lot more, hopefully a lot more training can become available in the future because just being able to incorporate the family can be a very effective way.
Speaker CMuch more cost effective way of doing this.
Speaker CNow, again, just to give a bit more tips to family members, if you have a loved one who struggled with hoarding and they are reluctant or resistant, it's really important to try to approach this person with compassion and really just giving them, letting them be heard, being able to listen to them.
Speaker CBecause oftentimes what happens in these tense family situations is that there's just a lot of arguing going on.
Speaker CAnd so that person is struggling with the hoarding tends to just dig in their heels deeper.
Speaker BYeah.
Speaker CAnd especially because they don't feel heard.
Speaker CThey just.
Speaker CAnd especially if individuals are just like throwing away items that belong to the person struggling, that does not help.
Speaker CIf you're throwing things away without their permission or throwing things away, say like when they're gone, that that just leads to them not trusting you and again, can actually make the hoarding symptoms worse.
Speaker BYeah, yeah.
Speaker CSo it's.
Speaker CAnd I know it's difficult.
Speaker CI don't envy people being in those situations.
Speaker CI experienced it myself because my dad used to was an individual who struggled with hoarding.
Speaker CAnd so I know how frustrating it can be.
Speaker CAnd it's tough.
Speaker CI mean, I'm not gonna lie, it is tough.
Speaker CThere's not a ton of resources, but again, support groups such as mine, there's.
Speaker CThe International OCD foundation has a lot of resources.
Speaker CNami, so national alliance on Mental Illness has some resources.
Speaker CAnd there's, there's.
Speaker CProfessional organizers can also be utilized in some ways.
Speaker CYou know, there's like a subset of professional organizers who are certified in chronic disorganization, as they call it, that they can often be utilized, whether in conjunction with a therapist or maybe as a replacement if one cannot find a therapist.
Speaker CBecause truly there are not a lot of therapists even in this, like a city of Houston, the size as large as we are, there are not many therapists who really treat hoarding disorders.
Speaker BYeah, well, as you were saying that I was thinking we always talk about how there aren't enough OCD providers and then you take it to look at hoarding, there's even less hoarding providers like, providers that specialize in hoarding.
Speaker BAnd so, yeah, I.
Speaker BI can't imagine.
Speaker BAnd like, yeah, candidly, you are one of the only people that I would know to reach out to.
Speaker BTo help someone with that treatment.
Speaker BAnd so it does.
Speaker BIt seems so scarce and needed.
Speaker BIf a family member is interested in learning more about the family Assisted motivation, is that what it's called?
Speaker CFamily as motivators.
Speaker BFamily as motivators.
Speaker BWhere should they go?
Speaker CDr.
Speaker CChasin, he's out of University of Chicago.
Speaker CHe has a website.
Speaker CI believe it's Gregchassen.com.
Speaker Cchassis is C H-A S S O N.
Speaker COkay.
Speaker CYou can look there.
Speaker CThose are the only ones that come to mind.
Speaker CI can't think of anything.
Speaker BIt's still so new too, right?
Speaker BThat's in the work.
Speaker CWell, I mean.
Speaker CI mean, it's been in as a pilot study since, like, 10 years ago, but it's still something that's being, you know, put out there more.
Speaker BRight.
Speaker CYou know, get more people trained in it.
Speaker BYeah.
Speaker BNo, I can't tell you how much I've learned today.
Speaker BEven just like, as soon as you said, well, we don't use the word hoarders, I was like, of course we wouldn't.
Speaker BThat makes so much sense.
Speaker BLike, why would you put someone as that identity, like, put that in there to their identity when it's something that they're working on to become fully functioning?
Speaker BBut even just the differences between behaviors and how some things aren't actually classified as hoarding, and there's a function behind it that you're having to look for.
Speaker BI've learned so much, and I could actually talk to you about this topic all day because it's interesting and it's necessary, and we need to be raising awareness on it.
Speaker BSo I cannot thank you enough for joining us for this episode today.
Speaker CThank you very much for having me here.
Speaker CIt's been a pleasure.
Speaker BYeah, of course.
Speaker BAnd we often do Q and A episodes.
Speaker BAnd so, listeners, if there's questions that you didn't get answered that Jelani and I spoke about, please submit them on our website.
Speaker BAnd, Jelani, we might ping those to you to get answers for.
Speaker CYeah, that'd be great.
Speaker BYeah, amazing.
Speaker BWell, really appreciate it.
Speaker BWe'll have to have you back sometime.
Speaker CThat'll be wonderful.
Speaker CThank you very much for having me.
Speaker BThank you.
Speaker BThis is the Anxiety Society.
Speaker BWe live it, we contribute to it.
Speaker BTogether we can change it.
Speaker AThank you for joining us today on the Anxiety Society podcast, where we hope you gained insights into the world of anxiety that you didn't know you needed.
Speaker BTo stay connected and access additional resources.
Speaker BVisit our website@anxietysocietypodcast.com and follow us on Instagram at the Anxietysocietypod.
Speaker BThere you can explore more content, submit your questions for the show, and connect with our growing community.
Speaker ADon't forget to subscribe to our podcast on your favorite platform so you never miss an episode.
Speaker AAnd if you enjoyed what you heard, please consider leaving us a review.
Speaker AYour feedback helps us improve and reach others that might benefit from hearing our message.
Speaker CAnd there's one thing that I need from you.
Speaker CCan you come through.